Myelom-Gruppe Rhein-Main

Last modified: 12 January 2013

About Myeloma Euronet

Anita Waldmann
President of Myeloma Euronet

Myeloma Euronet's vision: That every myeloma patient in Europe has a voice

 

Myeloma Euronet, a non-profit network organization of multiple myeloma patient groups, is a European initiative dedicated to raising the awareness of multiple myeloma, an increasingly common form of bone marrow cancer.

Myeloma Euronet provides information on the diagnosis, treatment and care of persons living with multiple myeloma and supports its member organisations in the fulfilment of their missions.

Myeloma Euronet also advocates, both independently and in collaboration with organisations with similar objectives, on behalf of those affected by multiple myeloma.

 

Myeloma Euronet was launched at the 10th Congress of the European Hematology Association (EHA) in Stockholm on 3 June 2005.

The goals of Myeloma Euronet are to:

  • Provide information on appropriate diagnosis, treatment, care and support for myeloma patients and their families
  • Advocate the cause of myeloma patients and their needs among EU health care policy makers and share best practice in shaping appropriate policies at the European level
  • Ensure equal access to the highest standards of treatment and care
  • Build partnerships among members of Myeloma Euronet in order to share experience and expertise
  • Encourage the growth of new multiple myeloma patient groups throughout Europe, especially in cities and countries where they are not now found
  • Raise European awareness of multiple myeloma amongst relevant stakeholders and the public

Myeloma Euronet’s core values:

  • Diversity
  • Transparency
  • Professionalism
  • Integrity
  • Commitment
  • Representative of myeloma patients

 

Myeloma Euronet is an international non-profit association (Association Internationale sans but lucratif, AISBL) registered in Belgium
rue de Dampremy, 67/32
B-6000 Charleroi
Belgium Registration number: 883.729.287
Myeloma Euronet’s Secretariat is located in Rüsselsheim, Germany.

 

Myeloma Euronet is a member of the European Cancer Patient Coalition (ECPC), the European CanCer Organisation (ECCO) and the European Organisation for Rare Diseases (Eurordis).

Myeloma Euronet works together with the European Medicines Agency (EMEA) and is listed in the European Commission’s Register of Interest Representatives.

The Myeloma Euronet Strategy July 2009 - June 2012 can be downloaded here (87 KB PDF).